Wednesday, August 26, 2015

Retired Doc Finds Surprise, Challenge as Hospice Volunteer

Retired physician Larry Larsen’s path to medicine started with a pause. It was 1979, and he was a grad student making his way from Denver to St. Louis to begin study at St. Louis University School of Medicine. He and his wife, Jeanne, packed up their few belongings and headed down the stairs of the spartan three-story apartment building they’d called home. Before stepping out the door, Larry stopped. His thought, one that would reverberate off the halls of his experience years later, was: “I hope I don’t ever get to a place in life where I can’t get back to this.”


Larry’s medical studies, through service in the U.S. Army, led him from St. Louis to an internship and residency through William Beaumont Army Medical Center in El Paso, Texas (1983-86), and then on to one year of internal medicine at Ft. Ord,  Calif. Having completed a PhD in pathology prior to medical school, he was interested in a fellowship where he could apply that background. In 1987, he began a sub-specialty Allergy-Immunology Fellowship at Fitzsimons Army Hospital in Denver and then served as staff in the Fitzsimons allergy training program. He worked for two years in private practice in Denver and then moved to Salt Lake City in 1995 to pursue an opportunity in clinical research.

In 2004, at 54 years of age, Larry was diagnosed with prostate cancer.  This diagnosis, and the treatment and course which followed, has had a profound influence on his point of view and course in life. Initial treatment included a robotic prostatectomy, new at the time. PSA (prostate-specific antigen) levels showed recurrence of the tumor in 2006.

In 2007, Larry left Salt Lake City and the field of medicine (he doesn’t like titles or the word “retire”), and he and Jeanne returned to Denver to be near family. 

“Something was bothering me,” he says. ” I wanted to be able to close my eyes and feel good about my life in my last days.”

THROUGH HIS CAREER, he explains, he had lost sight of his original ideal: living a simple, non-presumptuous life. He decided to take a CNA class. (He found it one of the most enjoyable times of his life.) He also decided to volunteer for hospice.

“We happened to live by Broomfield Hospice, so I went in, looked around and applied for the volunteer program.” Larry wanted to continue volunteering when he and his wife moved to south Denver.  He had heard good things about Agape Hospice and resumed his role with Agape.

Larry says he doesn’t let his professional background “interfere” with his role as volunteer.

“I'VE LEARNED WHAT'S IMPORTANT for patients are the everyday little necessities. Their days are made better through small intentions: making sure they have a nice bed, combing or brushing their hair, sitting and talking with them.” When patients aren’t feeling their best, he notes, a foot rub or basic care provided by CNAs makes a significant impact.

“I’ve realized how hard the CNA job is, and undervalued,” he says. “When I started in hospice, I thought, ‘I’d really like to help the nurses and CNAs, make their days easier.’”

Larry has been surprised and challenged by volunteering. He tells the story of a patient, just 20 years old, who had bone cancer. She was reliant on others to take care of her needs.

“I was bringing a lunch tray into her room when I first saw her. I walked in the door, and I almost had to take a step back,” he says. “She looked like a 12 year old. Her clothes were pink, and there were shawls and hats with pink feathers. It didn’t look like the typical 20-year-old’s room. This was a person who was denied a lot.”

He knew she had started treatment young, missing out on her young adult days. She had coordination problems and found it difficult to handle utensils. Larry tried to help her, and the young woman began to cry, saying, “Let me do this.”

“That was a deep experience. I hadn’t listened to her wish for independence,” he says. “That is one I’ll never forget.”

Larry explains that one of the most important things he has learned from volunteer classes about hospice, or practicing any kind of medicine, is, “It’s not about me.”

“When you enter someone’s door, you leave all your personal baggage and judgments outside. You take them for who they are. This is easy to say, but not always easy to do,” he says.

HE ALSO HAS A KEEN AWARENESS of the need for psychological help when people are facing serious illness or the end of life—and the stigma still associated with seeking mental health services.

“People have to be made aware that there is nothing wrong with it. If you’re willing to take care of your diabetes, it’s no less important to take care of your psychological health. Patients and family may need counseling or medication (even temporary). Because being close to death, things may open up in your life that have been suppressed.”

Larry recalls a woman in her 70’s, “very kind,” who was in her last days of life. She had been married to an abusive husband who, by her account, had made her life miserable. She hadn’t spoken about this with anyone. Sitting with “Dr. Larsen,” hospice volunteer, gave her the opportunity to tell an important part of her story, “to get it out into the open.”

Getting to what's most important starts with a pause. Larry began anti-androgen therapy in 2013 and continues with this treatment today.

“Because I value quality over quantity of life, I have not pursued any additional therapy, such as chemotherapy or radiation, as I don’t favor the risk-benefit value there—though radiation has come a long way since I was what I consider a reasonable candidate for it,” he explains. He is quick to say this is a personal decision for each individual to make.

“Anti-androgen therapy is not a cure and gradually the cancer cells out-smart it, which is becoming so in my case. And that’s okay,” he says. “My work with hospice staff and volunteers keeps reminding me that it’s not about me.”