Friday, March 11, 2016

Self-Care: Not Self-ish


March is National Social Worker Month and an ideal time to connect with our inner social workers. (It's also a great time to give a social worker a hug, gift, or recognition for the stellar work they do to make our world a better place.)   

People in healthcare professions pour themselves out as they serve patients and family. No matter what our jobs, life has a way of asking us to show up  and bring it every day. One of our volunteers, Lee King, compiled a handout on the subject of self-care. It starts with the following quote:

Self-care is not selfish. You can't serve from an empty vessel. 

This month, we're focusing on some ways to care for ourselves. Some of us are already good at this. The rest of us will need some practice. Regardless, here's a good place to start:

Self-Care Tip #1: Acknowledge Yourself
Remember, it is not selfish to take care of yourself. Consider sitting on a plane before take-off. The flight attendant instructs anyone traveling with children to first put on his or her oxygen mask, and then the child's. We are better at caring for others when we are properly equipped.

You have wishes, dreams, hopes for each day. You also have needs and limits. Some people have been rolling on auto pilot for so long, they haven't listened to their inner social worker in years. In the spirit of the movie "Inside Out," wake up that inner social worker. While you're at it, give the dude (or lady) a name!

Take a pause, a few quiet minutes to be without thinking about anyone's expectations (including your own). Be aware of your breathing. Recognize how you're feeling in the moment. Think about what you may need: Is the way you're living honoring your physical, mental and emotional health?

Your thoughts and feelings are valid and worthy. So are you.

Note: Self-care isn't something you put on your to-do list. Nope, it starts right now.


Thursday, February 11, 2016

Images of Agape

Since joining Agape Hospice last July, I’ve been asked a couple of times, “What the heck is Agape?” On occasion, I encounter a perplexed face, as in, “What did you say?” when I tell someone the name of our agency. 


As a former church pastor, I’m naively surprised by these responses. After all, I have personally explained agape from the pulpit in no uncertain terms. I was tested on its definition by professors in seminary years ago.

As I  think about it, it makes sense that most people are unfamiliar with agape. After all, it is a Greek term and not English. Although it is used many times in the Bible for selfless, unconditional love, it isn’t actually seen in print as agape. Rather, it is translated into English as just plain “love.” In reality, the concept behind this word demands thoughtful reflection. It’s an idea that really can’t be reduced to mere words; it can only be understood through action.

For many years, I thought I knew agape, but I didn’t really know it until I came to work in hospice. Now I encounter it every day. I see it in:

     The CNA (Certified Nursing Assistant) gently combing a lady’s glistening silver hair.
     A social worker holding the hand of a man who gasps for each breath of air.
     A chaplain listening attentively to a young woman explaining her struggle with how to tell her teen that she won’t be there for milestone events, like hearing about her first kiss or celebrating her graduation from high school.
     A volunteer sitting at the bedside of a dying man until the wee hours of the morning,  waiting for a family member to arrive, to ensure the patient doesn't die alone.
     A nurse compassionately explaining to members of a family what to expect in their loved one’s final days.

I now understand agape to be a verb. My Agape teammates inspire me to be more selfless and caring, to embody what Agape is all about, and to awaken each day to the simple thought: “How might I agape today?”


Jeff Jenkins,  M.Div.
Chaplain

Thursday, January 21, 2016

CoBANK Awards Generous Gift to the Agape Foundation

Agape had the honor of accepting a $5,000 check from CoBANK to the Agape Foundation. The check was presented by Agape volunteer and CoBANK employee Lee King this week at our all-staff meeting.

Lee received the check in combination with winning the CoBANK volunteer of the year award for 2015. We are grateful for this generous gift and what it will provide for patients and families in need.

As Volunteer Manager Beth Kelley said at the acceptance ceremony, Lee approaches her work as volunteer the way she approaches her life: Fully focused and dedicated to whatever she is doing. That means putting concerted effort into knowing each patient and family, what's important to them and how she can help make their days as meaningful as possible. Here's just one example:

Volunteer Lee King with Agape Owners,
Larry Woods and Kim West
When 97-year-old Trudy came onto Agape service, she asked if any of our volunteers hailed from Kentucky. Unfortunately, none of them did, but Lee King entered the scene and did the next best thing: She poured herself into learning about Kentucky, even finding a link to the town newspaper where Trudy used to live.

And Lee learned a whole lot about basketball. She said, "Basically, basketball in Kentucky is nothing short of religious. They love their basketball!"

This was true of Trudy. So Lee, armed with her new Kentucky knowledge, planned a special evening. She made Trudy's favorite foods (potroast, veggies and potatoes) and she, Trudy and Trudy's son gathered to watch the Kentucky Wildcats play Ole Miss.

The icing on the cake? Final score: Wildcats 80/Ole Miss 74.

We congratulate Lee for winning this honor. Humble thanks to Lee and CoBANK for the incredible support.



Patient name is pseudonym to protect privacy. 

Friday, December 18, 2015

Honor Them: Patient & Volunteer Vets

Don, Carl and Captain Schermerhorn
A certain camaraderie exists between two people who have served in the military that seems to span experience and generations. We've seen this in the depth of many relationships forged between Agape veteran patients and Agape volunteers who have served in the U.S. armed forces. 

This past week, we experienced something new: an honoring ceremony for two vets, both patient and volunteer. Patient  J. Carl Montoya (United States Army) and Agape volunteer Don Straney (United States Navy) both were honored for their service to our country in an "Honor Them" pinning ceremony. Volunteer, family, caregivers and staff of Agape and Villa Manor Care Center, where the ceremony was held, gathered to witness a deeply moving event.

This ceremony, carried out by U.S. Army Captain David Schermerhorn, was established by All Veterans Funeral & Cremation to honor as many veterans as possible for their sacrifice and service. All Veterans was founded in 1989 by a US veteran who was passionate about every service member receiving recognition, not just on Veteran's Day, but the other 364 days of the year.

Andrew Martinez honored 
Not letting any opportunity for recognition pass by (and acknowledging the importance of home front support), Captain David recognized Carl's wife, Esther, for her support of her husband as a service member. Carl's brother Andrew also was recognized for his own military service.

The room was heavy with emotion and humble strength. What a privilege to be there!




Friday, October 16, 2015

Can We Still Grow at the End of Life?

I REMEMBER cradling my newborn baby girl in my left arm, amazed that she could fit between the palm of my hand and my elbow. Fifteen years have since passed and today she stands 5 ft., 9 inches. Physically, she is almost fully grown; emotionally, like all of us, more growth is needed and will continue throughout her life.

When we think of growth, we focus on the physical; it's what we can see and measure in concrete terms. Emotional growth is less measurable and more difficult to describe, yet it unfolds before our eyes and can be quite apparent as behavior is demonstrated.

However, even more difficult to wrap our minds around is spiritual growth, which has a plethora of definitions and depends on one's faith tradition or perspective.

MY ROLE AS A HOSPICE CHAPLAIN is not to reduce spiritual growth to a simple, one-line definition. Instead, it gladdens my heart to present to hospice patients and their families a bold, incredibly energizing idea: Death is not without hope; growth can happen at the end of one's life.

When you think about it, this is mind-blowing! It's counter-intuitive because we are so focused on what we can see and measure (like measuring our children's height with pencil marks on a door frame). When someone is dying, when biological systems are failing, how is it possible for growth to happen? 
Yet (I dare say), the end of life possesses the potential for a kind of growth that is unfathomable at any other point in one's life.
Jesus said, "Unless a kernel of wheat falls to the ground and dies, it remains only a single seed. But if it dies, it produces many seeds" (John 12:24 ).

WHEN A TERMINAL DIAGNOSIS comes to us, our instinct is to think, "This is the end." Certainly, it may mean that the end of this life is drawing near. What if, however, as hospice professionals, we were able to help those involved see that it can mean much more than the end?  What if they could see they are, together, on the verge of something beautiful being birthed? The process of dying is difficult, but it is a sacred event that is ripe for transformation in the lives of those involved. It begs courage to enter into this way of thinking, but it offers such potential.
  
THIS POTENTIAL at the end of life can be encapsulated in one word: Hope – hope that something larger than oneself is happening. In patients and families I have met, I have seen both ends of the spectrum, from hopelessness to hopefulness. This could be expressed as, "I'm done; I just want to die," or, "As I die, I want to teach my children how to die and not be afraid of death."

My patients have taught me the truth of what Jesus said in John 12:24:  That life can be birthed out of death. My hope with each patient and family I meet is to introduce them to unseen possibilities and encourage them to step into a blank canvass upon which something beautiful and inspiring will emerge.


Wednesday, August 26, 2015

Retired Doc Finds Surprise, Challenge as Hospice Volunteer

Retired physician Larry Larsen’s path to medicine started with a pause. It was 1979, and he was a grad student making his way from Denver to St. Louis to begin study at St. Louis University School of Medicine. He and his wife, Jeanne, packed up their few belongings and headed down the stairs of the spartan three-story apartment building they’d called home. Before stepping out the door, Larry stopped. His thought, one that would reverberate off the halls of his experience years later, was: “I hope I don’t ever get to a place in life where I can’t get back to this.”


Larry’s medical studies, through service in the U.S. Army, led him from St. Louis to an internship and residency through William Beaumont Army Medical Center in El Paso, Texas (1983-86), and then on to one year of internal medicine at Ft. Ord,  Calif. Having completed a PhD in pathology prior to medical school, he was interested in a fellowship where he could apply that background. In 1987, he began a sub-specialty Allergy-Immunology Fellowship at Fitzsimons Army Hospital in Denver and then served as staff in the Fitzsimons allergy training program. He worked for two years in private practice in Denver and then moved to Salt Lake City in 1995 to pursue an opportunity in clinical research.

In 2004, at 54 years of age, Larry was diagnosed with prostate cancer.  This diagnosis, and the treatment and course which followed, has had a profound influence on his point of view and course in life. Initial treatment included a robotic prostatectomy, new at the time. PSA (prostate-specific antigen) levels showed recurrence of the tumor in 2006.

In 2007, Larry left Salt Lake City and the field of medicine (he doesn’t like titles or the word “retire”), and he and Jeanne returned to Denver to be near family. 

“Something was bothering me,” he says. ” I wanted to be able to close my eyes and feel good about my life in my last days.”

THROUGH HIS CAREER, he explains, he had lost sight of his original ideal: living a simple, non-presumptuous life. He decided to take a CNA class. (He found it one of the most enjoyable times of his life.) He also decided to volunteer for hospice.

“We happened to live by Broomfield Hospice, so I went in, looked around and applied for the volunteer program.” Larry wanted to continue volunteering when he and his wife moved to south Denver.  He had heard good things about Agape Hospice and resumed his role with Agape.

Larry says he doesn’t let his professional background “interfere” with his role as volunteer.

“I'VE LEARNED WHAT'S IMPORTANT for patients are the everyday little necessities. Their days are made better through small intentions: making sure they have a nice bed, combing or brushing their hair, sitting and talking with them.” When patients aren’t feeling their best, he notes, a foot rub or basic care provided by CNAs makes a significant impact.

“I’ve realized how hard the CNA job is, and undervalued,” he says. “When I started in hospice, I thought, ‘I’d really like to help the nurses and CNAs, make their days easier.’”

Larry has been surprised and challenged by volunteering. He tells the story of a patient, just 20 years old, who had bone cancer. She was reliant on others to take care of her needs.

“I was bringing a lunch tray into her room when I first saw her. I walked in the door, and I almost had to take a step back,” he says. “She looked like a 12 year old. Her clothes were pink, and there were shawls and hats with pink feathers. It didn’t look like the typical 20-year-old’s room. This was a person who was denied a lot.”

He knew she had started treatment young, missing out on her young adult days. She had coordination problems and found it difficult to handle utensils. Larry tried to help her, and the young woman began to cry, saying, “Let me do this.”

“That was a deep experience. I hadn’t listened to her wish for independence,” he says. “That is one I’ll never forget.”

Larry explains that one of the most important things he has learned from volunteer classes about hospice, or practicing any kind of medicine, is, “It’s not about me.”

“When you enter someone’s door, you leave all your personal baggage and judgments outside. You take them for who they are. This is easy to say, but not always easy to do,” he says.

HE ALSO HAS A KEEN AWARENESS of the need for psychological help when people are facing serious illness or the end of life—and the stigma still associated with seeking mental health services.

“People have to be made aware that there is nothing wrong with it. If you’re willing to take care of your diabetes, it’s no less important to take care of your psychological health. Patients and family may need counseling or medication (even temporary). Because being close to death, things may open up in your life that have been suppressed.”

Larry recalls a woman in her 70’s, “very kind,” who was in her last days of life. She had been married to an abusive husband who, by her account, had made her life miserable. She hadn’t spoken about this with anyone. Sitting with “Dr. Larsen,” hospice volunteer, gave her the opportunity to tell an important part of her story, “to get it out into the open.”

Getting to what's most important starts with a pause. Larry began anti-androgen therapy in 2013 and continues with this treatment today.

“Because I value quality over quantity of life, I have not pursued any additional therapy, such as chemotherapy or radiation, as I don’t favor the risk-benefit value there—though radiation has come a long way since I was what I consider a reasonable candidate for it,” he explains. He is quick to say this is a personal decision for each individual to make.

“Anti-androgen therapy is not a cure and gradually the cancer cells out-smart it, which is becoming so in my case. And that’s okay,” he says. “My work with hospice staff and volunteers keeps reminding me that it’s not about me.”  

Thursday, July 23, 2015

He's My Friend...He's My Brother


Last weekend, Agape volunteer Gary G. attended the celebration of life for one of the patients he supported for eight months.  His patient Frank* actually passed away in May. Not long before his death, Frank’s hospice nurse, Mary, asked him how his volunteer visits were going with Gary.  Frank was quick to respond, “Gary is not my volunteer any longer—he’s my friend.” I love that sentiment. Every weekend, Gary would drive from Centennial to Longmont to visit, not his patient, but his friend.  

When Frank died, his son communicated to us that the service was for immediate family...and Gary. The family held a celebration of life last weekend, and Gary was included. 

This happens with Gary time after time, as with Ed*, another of his patients. Ed had a son, and sometimes he wasn’t quite sure who was visiting – his biological son or “brother Gary.” Gary and the family rolled with it. Ed knew he had special people who came to visit on a regular basis. When Ed died, Gary was invited to this service, too.  He was at the funeral home and the graveside where Ed was interred with full military honors. 

Gary pays tribute to others. Yet what a tribute to Gary that he has been invited into one of the most intimate times of peoples' lives. Thank you Gary and all of our magnificent Agape volunteers. 


Grateful for you ~ Beth


*Not actual names